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Life with a CI

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How I prepared for emergencies as a cochlear implant wearer

Mon, 20 Apr 2020 By David B. Cluff

Ever get stuck in traffic and realize you are about to run out of gas? That was me a few weeks ago. As much as I was worried about running out of gas, I also feared that my cochlear implant sound processor would run out of battery life while I was stuck in traffic for three hours on a snowy night. That was when I realized that I was not fully prepared for any type of emergency.

From Unknowns to New Discoveries

Thu, 30 Jul 2020 By Sophie Woolley

My progressive deafness started twenty years ago when I was eighteen. By the time I was in my thirties, I had profound deafness in both ears. I wore hearing aids in both ears, and they were turned up very loud. When I decided to go ahead with cochlear implantation at thirty-nine, I had a lot of questions, more than my hospital had time to answer. Thankfully, my AB Mentors answered some of them by email, and they were a lifeline for me during this time.
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Practice, Patience, & Perseverance - Getting a CI Is Only the Beginning

Wed, 22 Sep 2021 By Julie Husting

I remember clearly the day my hearing aid audiologist suggested that I look into getting a cochlear implant. To say I was taken aback would be putting it mildly. I was hearing just fine with my hearing aids, as I had for thirty years. That was in 2012.

Getting Ready for College in the Time of COVID-19

Thu, 1 Oct 2020 By Emmy Cartwright

Having had a cochlear implant since I was thirteen months old, hearing and living with one is all I know. Now, at nineteen years old, I use a Naída Q90 in my right ear and a Naída Link CROS in my left. For those unfamiliar with CROS, it is a small hearing aid-like device that that I wear on my non-implanted left ear. It picks up sound from that side and delivers it to the sound processor on my right. This way, I can hear from all around me. I am currently attending Northern Arizona University, and come this Fall, I will be a sophomore.

How a mainstream school embraced our child and her cochlear implants

Fri, 13 Mar 2020 By Helen Tinsman, M.S. CCC-SLP

Our daughter Emmy was born with a profound hearing loss. Hearing aids were providing very little benefit and we quickly realized we needed a better solution. Our family decided that the right fit for Emmy was to pursue a cochlear implant.

How Parents can Empower Teens in Their Hearing Journey

Thu, 1 Apr 2021 By Cecilia Zugaib

If you are the parent of a teenager with hearing loss, you probably remember the beginning of the journey you embarked on when your child got diagnosed. You asked questions around speech recognition and development, you learned about hearing technology, you visited the audiologist, you equipped your child for school and extracurricular activities, and celebrated major milestones. Parents want the best for their children and inevitably remain their biggest advocates for life.

I’m a Mentor for Those with Hearing Loss. Here’s How I Tell Them to Face Unexpected Hearing Challenges

Thu, 18 Mar 2021 By Peggy Ellertsen

On the morning of July 3, 2017, after decades of reliance on hearing aids to help me cope with progressive, debilitating hearing loss, I began a new chapter in my years-long hearing loss journey when I received a cochlear implant (CI) at Massachusetts Eye and Ear Infirmary in Boston. The decision to take this step had been long in coming, my significant and stubborn ambivalence finally giving way to encouragement from my peers who had Cis, and my efforts to educate myself about them.

Intersection of Black Lives Matter and Hearing Loss

Tue, 11 Aug 2020 By Rebecca Knill

It was a minute before curfew in the aftermath of George Floyd’s murder, and I was anxious to get home. It had been a surreal Memorial Day week in Minneapolis: Entire blocks of the city, including a police station and a branch office of my employer, were looted and burned to the ground. Thousands of protesters blocked the freeway, and the National Guard had arrived.

My Life as a Cochlear Implant Wearer in the Time of COVID-19

Mon, 11 May 2020 By Natalie Cole

As an ER nurse and a mum of three young, energetic boys, I know how important it is to maintain social distancing to support our medical systems during this pandemic. Everyday activities are being adapted, especially for me as a cochlear implant wearer. It’s been pretty crazy at our house, but that doesn’t mean the fun has stopped.

Reclaiming My Life with Two Cochlear Implants

Fri, 1 Oct 2021 By JinMing Zhang

When I was 21 and in college, I suffered a sports injury. As a part of the treatment, the school doctor gave me gentamicin, a drug that I found out later was ototoxic and can cause permanent hearing loss. At first, I noticed the ringing in my ears. But by the time my hearing was tested, I was diagnosed with bilateral sensorineural hearing loss that sloped down to 70 dB in the higher frequencies.
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Why I wish I had gotten cochlear implants sooner

Fri, 13 Mar 2020 By Carrie A. Leising, MA

I received my first cochlear implant (CI) in 2013 in my left ear and in 2018 in my right ear. But I wish I had gotten them sooner. I learned that this is a feeling shared by most people with CIs. When I asked why they waited, they said it was because all the unknowns of a CI overwhelmed them when making this decision.