My CI Story

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Deafness Made Me Who I Am Today

Fri, 11 Jun 2021 By Stuart McNaughton

It might sound weird, but losing my hearing as a baby was one of the best things ever to happen to me. I see that now. From the moment my parents noticed I stopped responding to their voices, until the moment I was diagnosed two and a half years later, I observed the world with my eyes. I still do. Many times, my Mum has repeated the story: “They told me you were either incredibly deaf or incredibly stupid.” Forty years on, my Mum is still in disbelief that a medical professional would label a four-year-old boy in this way, but we have to remember this was in 1981. Attitudes have, fortunately, changed enormously.

From Childhood to Fatherhood

Fri, 16 Oct 2020 By David B. Cluff

When I lost my hearing at age six and got cochlear implants, my parents often wondered what my future would be like, who I would become, and what achievements I would reach. They were told many things from professionals about how I might not reach certain milestones in the academic world, and about what type of relationships I might have. However, they were persistent in trying their best, and had faith in my future.

From Unknowns to New Discoveries

Thu, 30 Jul 2020 By Sophie Woolley

My progressive deafness started twenty years ago when I was eighteen. By the time I was in my thirties, I had profound deafness in both ears. I wore hearing aids in both ears, and they were turned up very loud. When I decided to go ahead with cochlear implantation at thirty-nine, I had a lot of questions, more than my hospital had time to answer. Thankfully, my AB Mentors answered some of them by email, and they were a lifeline for me during this time.

Hearing the Full Range of Sound with Two Cochlear Implants

Thu, 18 Feb 2021 By Gretchen Flynn

My hearing journey began on a blistering cold day in January, 1995. That morning, when I awoke to a bizarre ringing sensation in my ears, it was easy to write the experience off to my being pregnant with twins and caring for my three-year-old son. Things went downhill after my twins were born. I started having trouble hearing the stove timer, the phone, and even my husband.

I Recently Got A Cochlear Implant. Here Is How It Went.

Thu, 4 Feb 2021 By Daniel Layne

Before having cochlear implant surgery, you may have questions about what to expect for the surgery, recovery, and initial activation of the cochlear implant. Hundreds of thousands of people have undergone the procedure all around the world, and it is natural to experience a wide range of emotions, including the anxiety that may accompany any medical procedure and the fear of the unknown. Surgery is a necessary, but brief, part of the process, and the more you know about cochlear implant surgery and recovery, the more comfortable you will be with the process. Here are some frequently asked questions about cochlear implant surgery and recovery.

Medication Took Away My Hearing. A Cochlear Implant Brought It Back.

Thu, 29 Oct 2020 By Henry Jason Klein

Back in the late ’80s and early ’90s, cochlear implants were just beginning to become more widely known. I remember seeing on television an elderly couple who were deaf and blind. She was given an implant and heard her husband's voice for the first time. This was my first impression of cochlear implants.

My 25-Year Hearing Journey With Advanced Bionics

Thu, 4 Mar 2021 By KaRon Michael

I’m told that I’m one of the originals. In 1994, after a terrible auto accident, I was fighting to save my right leg. The doctors prescribed a particular medicine and told me there was a twenty percent chance that I would lose my hearing from using it. To a 19-year-old active college student, there was no choice at the time. But it turned out that I was indeed part of that twenty percent.

My Cochlear Implant Saved Me from Constant Fears of Worsening Hearing Loss

Thu, 13 May 2021 By Tina Mancuso

I was 30 years old and on a cruise when I first noticed a problem with my hearing. A creaking sound woke me up one night, and when I rolled onto my right side, I could no longer hear it. When I returned home, a hearing test confirmed a severe hearing loss in my left ear, which did not improve with treatment. A conventional hearing aid did make everything louder, but it did not improve clarity, and I still had to rely on my right ear, for the most part.

My Journey into the Hearing World

Mon, 19 Apr 2021 By Priya Jones

My name is Priya Jones. I was born in Calcutta, India. When my parents adopted me, I moved to the United States of America when I was seventeen months old. I have bilateral severe to profound sensorineural hearing loss, and I wear two cochlear implants (CIs) to help me hear and understand speech. I also have craniofacial syndrome, which for me, means a cleft lip and palate, a bifold nose, and partial vision impairment in one eye.

Reclaiming My Life with Two Cochlear Implants

Fri, 1 Oct 2021 By JinMing Zhang

When I was 21 and in college, I suffered a sports injury. As a part of the treatment, the school doctor gave me gentamicin, a drug that I found out later was ototoxic and can cause permanent hearing loss. At first, I noticed the ringing in my ears. But by the time my hearing was tested, I was diagnosed with bilateral sensorineural hearing loss that sloped down to 70 dB in the higher frequencies.

Taking On Hollywood With My Cochlear Implant

Thu, 4 Jun 2020 By J.P. Giuliotti

J.P. Giuliotti is an accomplished American actor who also happens to be a cochlear implant recipient. His most recent role was on HBO’s hit show Room 104, where his CI was prominently visible, making him one of the first representatives of CI recipients on popular television. He shares with us how hard work and persistence lead him to success, despite this perceived disability.

Understand Speech Again with a Cochlear Implant

Wed, 23 Dec 2020 By Jack Leisure

I first discovered my hearing loss in Germany when I was serving in the U.S. Air Force and was selected for a special duty assignment for the National Emergency Airborne Command Post (NEACP). This assignment, however, required a few prerequisite evaluations, one of which was a hearing test. After shipping our household belongings to the States and preparing ourselves for leaving Germany in two weeks, I received notification that my orders had been canceled because I had failed my hearing test.

Walking the Path Beside Them

Mon, 6 Jul 2020 By Max Puplett

I’ve always had a deaf mother. When I was growing up, her hearing loss has defined our relationship, whether directly or indirectly. As a kid, it was confusing as to why other kids could talk to their parents whenever they wanted, but I had to fight over background noise or repeat myself multiple times, only to eventually be told that I should try repeating it later when there was no background noise.

Why a cochlear implant was the right choice for my spouse and our family

Fri, 13 Mar 2020 By Kelvin Ellis

My wife Carol has had hearing loss most of her life. She now uses a bimodal solution, with a cochlear implant in one ear and a hearing aid in the other. As with many families where hearing loss plays a big part of everyday life, our story was one of making do and getting by until we couldn’t any longer.

Why I wish I had gotten cochlear implants sooner

Fri, 13 Mar 2020 By Carrie A. Leising, MA

I received my first cochlear implant (CI) in 2013 in my left ear and in 2018 in my right ear. But I wish I had gotten them sooner. I learned that this is a feeling shared by most people with CIs. When I asked why they waited, they said it was because all the unknowns of a CI overwhelmed them when making this decision.